- Two weeks ago, Abbie was diagnosed with a benign fibrillary astrocytoma (probably spelled wrong). It is a tumor that reaches from her brain stem down into her spine.
-We were admitted immediately to Children's National Hospital in DC, where we were told that she needed surgery to at least biopsy the tumor, and remove as much of it as was possible.
-The tumor is actually embedded in her spinal cord, so it was likely that she would sustain major damage from surgery.
-She was operated on on a Friday, and 80% of the tumor was removed, without any major damage. The unofficial word was that it was benign.
-Her arms and trunk are very weak, but functioning, after surgery. It is going to take some physical therapy, but she will eventually regain everything back.
-We are home now, and resting, and glad to be out of the hospital! (Although, everyone there was really incredible.)
-She will need chemotherapy to shrink the tumor that remains in her brain, but it will be on an out-patient basis, and the chemo will be low-dose. It shouldn't take more than a year.
Busy couple of weeks. Keep us in your prayers!
Sunday, May 28, 2006
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